HIV Longevity Still Fighting…

9Mar/12Off

Hemophilia Days on Capitol Hill

Posted by Vaughn Ripley

March is National Hemophilia Awareness Month. Groups like the National Hemophilia Foundation (NHF) http://www.hemophilia.org and the Hemophilia Federation of America (HFA) http://hemophiliafed.org/ spend countless hours working diligently all year long to ensure that legislative action is kept up with and followed through to protect the hemophilia community’s rights and needs. Once a year, the NHF [...]

23Feb/12Off

Shoes of a Hemophiliac

Posted by Vaughn Ripley

We often hear statements like, "Oh yeah ... Well you should try walking in my shoes..." Today, I'd like to offer my shoes and allow you to see through the eyes of a hemophiliac. Let's start off by explaining what the heck hemophilia is. Hemophilia is a rare bleeding disorder in which your blood does not clot normally or properly. It is carried in the X chromosome, and is called an X-linked genetic disorder. Cutting through all of the obfuscation, it essentially means that [...]