The Truth About Hemophilia
A better title for this article might have been, Hemophilia is a Pain in the Butt!
Or even, Allow Myself to Explain -- Myself.
However, I stuck with this one. Basically, I thought I would introduce you clotting readers to the [...]
Giveaway for Hemophilia Awareness Month
Do you want to win a COo.oOL prize?
I'm giving away a $67 Amazon Gift Card and a signed copy of my book, Survivor: One Man's Battle with HIV, Hemophilia, and Hepatitis C at the end of March. March is Hemophilia Awareness Month, and I decided to run a contest/giveaway to support Hemophilia Awareness, give back to my friends, and gain followers at the same time!
It's easy to enter and I will draw one lucky winner from the contestants on March 31, 2013. In order to qualify you need to [...]
Hemophilia Days on Capitol Hill
March is National Hemophilia Awareness Month. Groups like the National Hemophilia Foundation (NHF) http://www.hemophilia.org and the Hemophilia Federation of America (HFA) http://hemophiliafed.org/ spend countless hours working diligently all year long to ensure that legislative action is kept up with and followed through to protect the hemophilia community’s rights and needs. Once a year, the NHF [...]
Shoes of a Hemophiliac
We often hear statements like, "Oh yeah ... Well you should try walking in my shoes..." Today, I'd like to offer my shoes and allow you to see through the eyes of a hemophiliac. Let's start off by explaining what the heck hemophilia is. Hemophilia is a rare bleeding disorder in which your blood does not clot normally or properly. It is carried in the X chromosome, and is called an X-linked genetic disorder. Cutting through all of the obfuscation, it essentially means that I inherited a factor VIII (factor-8) deficiency from my mother, who was a carrier. Dumbing (is that even a word?) it down even further, it means that unlike average boys and girls, if I get bruised or cut, I will not stop bleeding without medical assistance.
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